Remember when we had coffee last month and I said I’d been home for 12 days straight and kind of liked it? I spoke too soon. I take it back. Covid-19 was in the background a little then. We were aware of it as a nation but not scarily affected. Well now it’s right in… Continue reading Civilisation Not As We Know It
Tag: Spinal Muscular Atrophy
Disabled Access Day – Isn’t Just A Day
Inadequate access. Good access. Crazy access. Access. It’s basically why I blog, why I started writing and ranting to you almost four years ago. I wanted to raise awareness of what access is, how it can improve and the places that get it spot on. Because it’s a part of my life. Access isn’t just… Continue reading Disabled Access Day – Isn’t Just A Day
12 Steps to Becoming a Confident Wheelchair User (pun intended)
I recently got a new wheelchair, well I got it almost a year ago, but things take time to get used to. You may have heard my moans. It wasn’t until I got my new wheels, a chair totally different than any I’ve had before, that I really considered the impact my wheelchair has on… Continue reading 12 Steps to Becoming a Confident Wheelchair User (pun intended)
Friends, Flu and Frustrations
January is usually the longest month of the year, feeling like it has at least 372 days in it. January 2020 has felt quite different. Yes it’s 2020. I’m still having trouble typing and saying it. Sounds like the future doesn’t it?! Twenty Twenty. Well if we are in the future, it still feels pretty… Continue reading Friends, Flu and Frustrations
Gig Going – Like Anyone Else
‘Like anyone else’ Those are words I’ve longed to hear for a lifetime. That they should even be considered news in 2019 is unacceptable yet not all that shocking when you’re in my wheels. Having a disability doesn’t mean I want special treatment, equality is all I ever ask for. More than anything I wish… Continue reading Gig Going – Like Anyone Else
An Unlikely Friendship
I’ve called him stripy. Not the most creative name I know, but he’s one of the stripy kind. The creepiest of them all. The ones with big bodies and tiny crooked legs. I bet he’s hairy too. I haven’t got that close though, only when the glass is between us. When I go outside I… Continue reading An Unlikely Friendship
If We Were Having Coffee – Life Musing #3
If we were having coffee I might struggle to find a suitable table. The day after I wrote this post about chips that included a mini rant about tables, my rage got multiplied. I went into the world famous coffee chain I have a love/hate relationship with (Starbucks) to find they’d had a refurb. Some… Continue reading If We Were Having Coffee – Life Musing #3
Crafting With A Physical Disability – Finding My Thing
I’m a fidget. I’m not very good at doing nothing. If I’m watching tv I’m crafting, if I’m crafting I’m watching tv. I can even craft and read now thanks to my audiobook discovery. For somebody that can’t move very much, I’m never still. My hands have to be kept busy, and if they’re not… Continue reading Crafting With A Physical Disability – Finding My Thing
Me, Myself and SMA
August is SMA awareness month. I’m pretty aware all year round, but I invited you guys to put to me some questions. I talk a lot about access and wheeling around. But I don’t talk a lot about my actual condition. There is so much more to SMA than having wheels. In fact having wheels… Continue reading Me, Myself and SMA
Three Whole Years Of Rambles
That came around fast. Yesterday marked three years since I posted my very first thought on here. It was a confession of why I blog, and my reasons haven’t changed much. I’m still just as shocked now when I get a view or follower as I was on that very first day when I had… Continue reading Three Whole Years Of Rambles
