January is usually the longest month of the year, feeling like it has at least 372 days in it. January 2020 has felt quite different. Yes it’s 2020. I’m still having trouble typing and saying it. Sounds like the future doesn’t it?! Twenty Twenty. Well if we are in the future, it still feels pretty… Continue reading Friends, Flu and Frustrations
Tag: Spinal Muscular Atrophy
Gig Going – Like Anyone Else
‘Like anyone else’ Those are words I’ve longed to hear for a lifetime. That they should even be considered news in 2019 is unacceptable yet not all that shocking when you’re in my wheels. Having a disability doesn’t mean I want special treatment, equality is all I ever ask for. More than anything I wish… Continue reading Gig Going – Like Anyone Else
An Unlikely Friendship
I’ve called him stripy. Not the most creative name I know, but he’s one of the stripy kind. The creepiest of them all. The ones with big bodies and tiny crooked legs. I bet he’s hairy too. I haven’t got that close though, only when the glass is between us. When I go outside I… Continue reading An Unlikely Friendship
If We Were Having Coffee – Life Musing #3
If we were having coffee I might struggle to find a suitable table. The day after I wrote this post about chips that included a mini rant about tables, my rage got multiplied. I went into the world famous coffee chain I have a love/hate relationship with (Starbucks) to find they’d had a refurb. Some… Continue reading If We Were Having Coffee – Life Musing #3
Crafting With A Physical Disability – Finding My Thing
I’m a fidget. I’m not very good at doing nothing. If I’m watching tv I’m crafting, if I’m crafting I’m watching tv. I can even craft and read now thanks to my audiobook discovery. For somebody that can’t move very much, I’m never still. My hands have to be kept busy, and if they’re not… Continue reading Crafting With A Physical Disability – Finding My Thing
Me, Myself and SMA
August is SMA awareness month. I’m pretty aware all year round, but I invited you guys to put to me some questions. I talk a lot about access and wheeling around. But I don’t talk a lot about my actual condition. There is so much more to SMA than having wheels. In fact having wheels… Continue reading Me, Myself and SMA
Three Whole Years Of Rambles
That came around fast. Yesterday marked three years since I posted my very first thought on here. It was a confession of why I blog, and my reasons haven’t changed much. I’m still just as shocked now when I get a view or follower as I was on that very first day when I had… Continue reading Three Whole Years Of Rambles
99 Problems But The Wheels Ain’t One
It’s not all about the wheels, in fact it’s not really about the wheels at all. I’m not a Jay-Z fan I can rarely finish a whole slice of cake I’ll never know if I make a good brew Books are heavy My TBR pile will definitely outlive me I can’t take a good bite… Continue reading 99 Problems But The Wheels Ain’t One
If We Were Having Coffee – Life Musing #2
If we were having coffee I wouldn’t order cake. I know I said I always would. It’s ok, I’m ok. It’s been quite the month of cake. It started with my nieces 7th birthday at the start of April, and ended with my 34th birthday near the end. We are the type of people that… Continue reading If We Were Having Coffee – Life Musing #2
So I Want To Live In a Windmill
I know, I know, I’m in a wheelchair. It hasn’t slipped my mind. A windmill isn’t known for its great wheelchair access, those winding stairs would be a mission. It’s ok, I’ve got it all sussed. Let me paint you a picture.... There’s a large field with just one pear tree standing in the centre,… Continue reading So I Want To Live In a Windmill
