I was having a nightmare with my repeat prescription the other week. Who am I kidding, I have a problem with prescriptions most weeks. But this particular problem had taken an email, a phone call with a doctor, a couple of phone calls with the pharmacy, a visit to the pharmacy, missing items, another visit… Continue reading It Takes Time To Be Disabled
Tag: Spinal Muscular Atrophy
If We Were Having Coffee – Life Musing #13
If we were having coffee mine would be a hot chocolate. I’ve really got back into them lately (spurred on by something you’ll see later in this post), it is the season for it anyway. Gosh has it been cold! It snowed. Ok so, it was the tiniest bit of snow I’ve ever seen. But… Continue reading If We Were Having Coffee – Life Musing #13
If We Were Having Coffee – Life Musing #12
If we were having coffee I’d apologise for being AWOL, there hasn’t been much to talk about of late. And what there has would turn into a rant. That might be coming soon. I’ve been mostly reading, so nothing much has changed there. It’s been a reading kind of year. When you can’t go many… Continue reading If We Were Having Coffee – Life Musing #12
7 Things SMA Has Given Me
Today marks five years since I published my first blog post. It feels like only yesterday, and also feels like I’ve never not blogged. What did I do with my time before? What did I procrastinate from? Because as much as I do enjoy writing, I’m even better at finding other things to do while… Continue reading 7 Things SMA Has Given Me
If We Were Having Coffee – Life Musing #10
If we were having coffee it would be in my garden. Because we’ve reached that stage again. Come full circle if you like. It’s been over a year since we were all told to stay at home. And I’ve taken that instruction, like I do most things, with determination, will power and a huge amount… Continue reading If We Were Having Coffee – Life Musing #10
I’m Not Special – Language is Crucial
On the last day of accessible advent (I know that feels like forever ago!) I posted a comment that seemed to spark discussion. Door 24 - Language is crucial. Terms like ‘wheelchair bound’ and ‘special needs’ give a negative and incorrect message.So I decided to write about it a little more, and get the views… Continue reading I’m Not Special – Language is Crucial
If We Were Having Coffee – Life Musing #9
If we were having coffee it would again be virtually. How’s lockdown 3.0 going for all those in the UK? Not much different for me so far, as I’ve been shielding since March 2020. If we were having coffee I’d ask if you can believe it’s 2021?! I don’t know how that happened. I thought… Continue reading If We Were Having Coffee – Life Musing #9
Accessible Advent
When I saw that @GinnyAndT was starting #AccessibleAdvent on social media I had to get involved. Every day of December I added my bit to #AccessibleAdvent by posting one thing that would make my life more accessible as a wheelchair user. For those of you that don’t have, or don’t follow me on social media,… Continue reading Accessible Advent
9 Winter Warmers For Dealing With The Cold
The older I get, the less a fan of winter I become. It’s 4.30pm right now, and it’s dark outside. I feel like hibernating, I mostly do (Edit: Even more so now we are on lockdown 2.0 of a pandemic that's been happening for going on a year now). I have no intention of leaving… Continue reading 9 Winter Warmers For Dealing With The Cold
Twenty Questions with – Fleur Perry
On my four year blogging anniversary celebration I announced that I’d be restarting the Twenty Questions series that I took a break from almost two years ago. Twenty Questions is fairly explanatory from the title. I ask fellow bloggers a set of questions that give us a little peek into their lives and personality. If… Continue reading Twenty Questions with – Fleur Perry
Wheelescapades 