I was having a nightmare with my repeat prescription the other week. Who am I kidding, I have a problem with prescriptions most weeks. But this particular problem had taken an email, a phone call with a doctor, a couple of phone calls with the pharmacy, a visit to the pharmacy, missing items, another visit… Continue reading It Takes Time To Be Disabled
Tag: SMA
If We Were Having Coffee – Life Musing #13
If we were having coffee mine would be a hot chocolate. I’ve really got back into them lately (spurred on by something you’ll see later in this post), it is the season for it anyway. Gosh has it been cold! It snowed. Ok so, it was the tiniest bit of snow I’ve ever seen. But… Continue reading If We Were Having Coffee – Life Musing #13
If We Were Having Coffee – Life Musing #11
If we were having coffee I would turn up in my mask. Because although they’ll become optional from tomorrow, it’s an easy thing to do isn’t it, wear a mask (those actually exempt for health reasons excluded). Ditching the masks isn’t the only event tomorrow. So called ‘Freedom Day’ is happening and it doesn’t feel… Continue reading If We Were Having Coffee – Life Musing #11
Twenty Questions with – Fleur Perry
On my four year blogging anniversary celebration I announced that I’d be restarting the Twenty Questions series that I took a break from almost two years ago. Twenty Questions is fairly explanatory from the title. I ask fellow bloggers a set of questions that give us a little peek into their lives and personality. If… Continue reading Twenty Questions with – Fleur Perry
Pandemic Project – One Stitch at a Time (#The100DayProject)
I’m a crafter. It’s something I have to do. I’m rubbish at sitting still, and because my hands are the only thing I can move, I fiddle. One of my aims for the year was to take part in #The100DayProject and what better time for it to fall than in the midst of a global… Continue reading Pandemic Project – One Stitch at a Time (#The100DayProject)
If We Were Having Coffee – Life Musing #5
If we were having coffee you’d probably come round mine as I’ve only left the house a few times this year. One of which was in an ambulance. At one point last month I had a running streak of 12 days inside. By that I mean I didn’t even step into the garden. It’s worrying… Continue reading If We Were Having Coffee – Life Musing #5
Friends, Flu and Frustrations
January is usually the longest month of the year, feeling like it has at least 372 days in it. January 2020 has felt quite different. Yes it’s 2020. I’m still having trouble typing and saying it. Sounds like the future doesn’t it?! Twenty Twenty. Well if we are in the future, it still feels pretty… Continue reading Friends, Flu and Frustrations
6 Ways To Get That Festive Feeling (Maybe)
I’m on my second corny made for tv Christmas film of the day, sitting beside a Christmas tree, writing Christmas cards, and I still don’t feel like next week is Christmas. I’m just not getting the festive feelings at all this year. The Tree Is UpPutting up the tree is usually the start to Christmas… Continue reading 6 Ways To Get That Festive Feeling (Maybe)
Crafting With A Physical Disability – Finding My Thing
I’m a fidget. I’m not very good at doing nothing. If I’m watching tv I’m crafting, if I’m crafting I’m watching tv. I can even craft and read now thanks to my audiobook discovery. For somebody that can’t move very much, I’m never still. My hands have to be kept busy, and if they’re not… Continue reading Crafting With A Physical Disability – Finding My Thing
Me, Myself and SMA
August is SMA awareness month. I’m pretty aware all year round, but I invited you guys to put to me some questions. I talk a lot about access and wheeling around. But I don’t talk a lot about my actual condition. There is so much more to SMA than having wheels. In fact having wheels… Continue reading Me, Myself and SMA
Wheelescapades 