You might remember last month I interviewed fellow disability blogger Carrie of Life On The Slow Lane. She very honestly and openly answered my Twenty Questions (you can catch up with that here, and answer them yourselves if you like!).
Meanwhile here I was busy working away on replies to Twenty Questions Carrie had composed for me. (Exciting, and thought provoking!)
I thoroughly enjoyed this task. Not only did it make me think about things that I maybe hadn’t before. It also enables people to get to know a bit more about me. Sometimes it’s difficult to know what to say when describing yourself to people, you go a bit blank and just say the boring stuff such as ‘I like tea’, of which I do, and it’s very important you know that. But there’s loads of other stuff about me that even I don’t realise!
Read on for my responses.
I have to say I particularly enjoyed questions 5, 8 and 9.
I would like question 8 to happen regularly!
I can’t wait for question 5 to become a reality.
I doubt question 8 will, however much I hope.
Questions 4 and 16 really made me appreciate what I have.
Questions 18 and 19 really got me thinking. Maybe too much.
Carries Questions/My answers
1. What is your biggest ambition in life?
I wouldn’t say I’m the ambitious type, there’s lots of things I’d like to see and do as you’ll find out throughout these questions. But when it comes down to it I’d just like to be content and happy. For my friends and family to be too. It’s the simple things that make life.
2. What is your dream job?
I love anything arty and creative. I’m too indecisive to give you one dream job title, but I’d like to be in at atmosphere where I am surrounded by creativity. I enjoy making things, drawing, textiles and, I’m going to say I would like to work in theatre design, costumes and props.
3. What do you most regret?
I don’t think I have any major regrets. That’s no way to live.
I do often regret not ordering dessert when I’m out with friends and theirs arrives leaving me sugar craved.
4. If you could live anywhere in the world, where would it be and why?
Although there are so many places I’d love to visit I think I’m perfectly happy living where I am. On the big scale of things, I love England, it’s history, its heritage, the traditions, and yes the weather! I know it’s something everyone moans about, I’m guilty of that too, I know it can be unpredictable and awfully grey at times, but I like the differing atmospheres. We are lucky enough to get sun, snow and thunderstorms, but nothing too extreme or scary.
On a smaller scale I like the area I live in, Norfolk, I’m in a small town, not far from the city, the sea and the countryside. Norwich is a diverse city, of art, architecture and music. I can also easily get to London.
5. Dream dinner party guests: if you could invite any 5 people, alive or dead, who would you choose and why?
Alexander McQueen, Tim Burton, Andy Warhol, Stephen Hawkins, and Banksy. All creative, passionate and intelligent minds that know what they are/were and do their thing with conviction. Need I say more.
6. If you could visit any time period throughout history, when would it be and why?
Well I don’t think wheelchair access is going to be very reliable however far I travel back. As a mega Downton Abbey fan I’d love to dress 20’s style and attend one of Lady Mary’s Luncheons.
I’d also love to go back and spy on the child me, my Mum as a child or my grandparents.
7. If a genie were to grant you any 3 wishes, what would you wish for?
This is the one I’ve been struggling with (I take these questions seriously!), do I go for the big things…. world peace, a cure for SMA, an end to poverty?? Or the smaller stuff like a fully accessible luxurious house, enough money to help friends and family, to have a talent to make me a living?? Basically it depends how good this genie is, and what the rules are. There are always rules and consequences to these things! Maybe I shouldn’t rub the lamp…..
8. What is your ideal holiday?
My dream is to visit Florence, Italy. The complications, discomfort and fear of loosing or breaking my wheelchair, has meant that I haven’t flown since I was a child.
I’m not a ‘by the pool girl’, although I do love a spa! My ideal holiday would involve seeing the sights, being around locals, visiting little cafes, museums, galleries, a wheel along a river and cocktails on a roof! With warm but not sweltering weather. Don’t ask me where this destination is, although I’m open to suggestions.
9. If you were Prime Minister for one day, what would you do?
Cancel Brexit. Can I say that? Shouldn’t we have learned by 2017 a united world is a better world…..
I think I might need longer than a day!
10. Who or what inspires you most in life?
I can be inspired by the simplest things. I wouldn’t say that one event or person has inspired me to be something. It can be a book I’ve read, a chat with a friend, a film I’ve seen, that can inspire thoughts inside me. Make me want to be a certain way or do a certain thing. In fact I am often inspired just people watching, seeing how people react can trigger a thought or idea.
11. Could you please share 3 interesting facts about yourself?
- I won first prize in a national textile design competition. My prize was to visit Première Vision in Paris.
- I eat almost everything with a fork, including wotsits.
- I haven’t seen my natural hair colour since I was 16. I’ve had almost every colour, including blue and red at the same time. I’m now 32.
12. How would you describe yourself in 3 words?
Persistent sarcastic tea-drinker
13. If you could spend one day in someone else’s shoes, who would it be and why?
Can I say my cat even though they don’t wear shoes?
I’d lay around on the windowsill, worry free, watching the day go by. Maybe take a little nap, and have some chewy treats. Get cooed and massaged on the head if I’m good.
14. What is your biggest fear?
Spiders! I really do hate them. And unfortunately most of my PAs do too. I didn’t think of that question when I interviewed did I?! Job title ‘spider catcher’!
Umm on a more serious note…. everyone’s fear, loosing family and friends.
Disability wise, loosing strength, the independence I have, and communication.
15. What annoys you most?
Although you haven’t read question 18 yet, you can refer to it here.
I think moaners annoy me the most (yes I know I moan too, we all do). You know those people that make a big deal of nothing. I know everybody is different, we all have our issues and our weaknesses. But people, stop sweating the small stuff, appreciate what you’ve got. Enjoy the washing up! Appreciate the walk to the shop for milk to make yourself a brew. Yes you’ll get colds, and they are irritating, but the likelihood is you’ll be over it in a few days.
16. What makes you happy?
Being around friends and family. My cats. A day in the sunshine. Drinking tea. Netflix days. Ache free days. A facial at the spa. A good book. Seeing the end result of my craft project. Festivals. The outdoors.
17. If your life was a novel, what would the title be?
‘Wheelescapades’. The title of my blog, as that took me long enough to think up. I’m no good at these things.
18. What is your disability, and what frustrates you most about it?
I have SMA 2 (Spinal Muscular Atrophy Type 2).
I think it’s probably the small things that frustrate me the most. The little day to day things that most people take for granted. Yes I’d love to travel the world problem free, have an amazing job without limitations. But it’s not just me and my disability that doesn’t get that.
What I’d like is to be home alone (with at least 7 cats), make myself a brew, switch on the tv, do all the crafting I want, and get up for wee when required! Fall into bed exhausted (without connecting my feed, and breathing machine), sleep comfortably and uninterrupted, meet a friend for breakfast at the drop of a hat. I’d even be up for doing the washing up!
Also I’d quite like to just have a cold without wondering if/when it will put me in hospital.
19. In theory, if a magical cure were available, would you want it or not?
Ok I know I’m probably supposed to say no here, as someone that is trying to fight for change in people’s perception of disability blah blah. But yes I would take that cure. I wouldn’t change my past life for anything, if I could keep the knowledge I have, the friends and family I’ve got, and the experiences I’ve been through. Then yes, give me that cure!
20. Why did you become a blogger?
I get into some awkward, funny and difficult situations mainly due to my disability, I also get different experiences and treatment with/from people due to being a wheelchair user. My friends and I would always joke about this, the good and the bad, as a way of coping I guess. Sometimes you have to laugh or you’ll go crazy. Often saying if only people could hear us, I should write a book of all this drama. Well I guess blogging is my book of tales.
I also wanted a serious side to the blog. Not many websites give you the gritty details of accessibility to a venue. Yes they are starting to announce being ‘wheelchair accessible’ or having an ‘accessible toilet’ but accessible can mean so many different things. Just getting in the entrance doesn’t make a venue/event accessible. I wanted to chart good and bad access. To get people to look at it more.
So now you know a little more about me and what goes on in my tiny mind, some very random stuff too!
What questions would you put to me? Feel free to comment below!